BJ Higgins Celebration Service Video
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- Webteam
Because of the high demand of bloggers attempting to view the Celebration Service, we are experiencing difficulties and we are working on correcting this issue. Please check back for availabilty.
- Webteam
Believers,
Family,
To the "Great Cloud of Witnesses"...
Fellow believers,
Memorial Calling: 3-8 p.m. Thursday, September 29, 2005 at Northside Baptist Church, 3021 East 71st St., Indianapolis
Just before 3 this morning, my precious BJ went home to be with all of our Precious Jesus. "Well done, thou good and faithful servant."
He is hooked back up to dialysis. We are waiting to see how this impacts his blood pressure. Initially, dialysis will lower the bp. His bp is low already. If acid in his blood due to kidney malfunction is the issue, then dialysis should correct the problem. If infection is the issue, dialysis will have less impact.
It's not looking good. They'll try to hook back up to dialysis. Erratic blood pressure. High heart rate. Could be infection. Lord you know, and you are in control.
His Blood Pressure is coming up, but not stable yet, so he may get more fluids. His blood gases are better-actually the best in a while. His heart rate remains high due to the dopamine...the drug to increase his BP. His SAT has dropped from 95 (where it was before this started) to the 80's. We are waiting for all to stabilize...and believe it will. He may have to restart Cvvh or dialysis earlier than planned. There is the risk of bleeding or increased bleeding at surgical sites if he start back now.
Bj's blood pressure is falling, his heart rate is rising, and they are trying to find a new place to get a good read for his SAT. The Dr. believes his lactic acid has risen due to no renal function, and may be causing this. They are starting Sodium bi-carb, and fluids to try to resolve this. They may have to restart dialysis early.
BJ's gasses were taken at 4 and they remain about the same. A "wound vaccuum" arrived today, which will be placed over his wound from the infection they recently removed. This machine will keep the area clean without the dressing being changed daily. They tried to attach it today, but were unable to make it seal, so they will let it further heal tonight and put it in place tomorrow morning.
Late last night and this morning, 2 different doctors have given us a little room to believe that BJ's improvements, though small, are a good sign. I believe sometimes I struggle to understand exactly what the doctors mean, and try to read between the lines. Misinterpretation can follow.
Little has changed overnight. His numbers are about the same. They are reducing blood pressure meds and he is handling it well, so far. There is not a lot to report and I know you are trying to go to church, so thank you for checking one more time.
Late tonight, BJ's blood gases continue to improve a little bit. We are very thankful for this. His SAT's are consistently in the upper 80's to low 90's.
Good evening.
We continue to play the waiting game. They will do another blood gas test at 4. These haven't been excellent, so please pray that they will begin to show significant improvement. When the doctors changed BJ's chest dressing they were able to pull off more fluid from the wound (from his surgery to remove chest tubes yesterday). Dr. Williams said anywhere they can get fluid from is good.
BJ's fever has subsided for the time being, for which we are grateful. At 10 am his blood gases were slightly better, but nowhere near where they need to be. Dr. Williams explained that, though they have turned down his oxygen, that may be decieving because they've increased the pressure. He said this may be the real reason BJ's X-ray looked better this morning. We hope not. BJ's kidneys still are not functioning.
Dr. Sichting expected Beej to get worse overnight and "he really didn't." His blood gas numbers are not great. Some have improved slightly, and some have declined. His surgery sights are expectedly seeping, and will need changed often. He is running a temperature of near 101. Cultures have been sent to see if yesterdays procedures "stirred" something up, infection wise.
The Lord has delivered Bj through this day, and we Praise Him!!!
The plastic surgeon is getting ready to remove the dead tissue on BJ's back. What was thought to be a bedsore, is in fact a collection of blood that has infected that area of his body. There is a significant risk of bleeding in this procedure, especially because BJ has been on the blood-thinning medication. Their primary concern is that the bleeding get out of control. There is also a risk of dead tissue detaching and getting into BJ's blood stream. This surgery should take about 30 minutes...
Prayer Warriors,
Beloved of the Lord,
His numbers are not great, but stable for now. The surgeon will at 2pm try to insert a new chest tube into BJ's left chest cavity. One of three things will happen: 1.He will not be able to get into the chest cavity because the ventilator will have his lungs fully expanded to the chest wall. 2. He will find the pocket of fluid and be able to drain it. 3. He will get into the chest cavity and not be able to drain it because of clotted fluids.
Increased ventilator settings have brought his SAT numbers back up...Blood pressure trying to be stabilized with dopamine and fluids...surgeon en route to look at chest tubes and give opinions...
Bj's blood pressure is dropping and his SAT's are falling hard...Lord he is in your hands!!!
Things are worse this morning. Bj's white blood cell count is significantly up, which means infection. His x-ray on the left side looks worse, either fluid or infection has invaded. The "bedsore" could be from internal bleeding and could go much deeper, which also could be the source of infection. The plan is to take him off the CVVH, which hepronizes him, and put another chest tube in to drain fluid from lung and then a surgeon will treat the wound to get rid of bacteria.
A quiet evening: oxygen sat right at 90 and blood pressure holding steady. He didn't need to have extra sedation meds all afternoon with music playing in his ears! Status quo is on the agenda for the night. Tomorrow is day 40 so, prayer warriors, it would be a great day for new miracles! Pray on!!
Dr. Sichting just stopped by to update us. She told us they have found that his lower left lung lobe never has re-expanded. She had an ultrasound done today, and discovered he has thin fluid and thick fluid in his chest cavity, preventing it.
Good afternoon!
Good Morning! BJ had a quiet uneventful night. His Sat's are in the low 90's this morning. He will be turned to his tummy again today. There has been very little change. We want and hope to bring news of change and good reports but stable just has to be enough, and that is okay. Oh how we want him to be better, and to talk to him. He has layed flat in bed for a long time now. When he is responsive, it happens once every 3 or 4 days, and lasts about 15 to 30 seconds. Even then he can only communicate with an attempted eye movement or on rare occasion a head nod. These moments bring us hope, but at the same time an intense yearning to be able to hold him, love him, and allow him to talk for long stretches as he is prone to doing. He has so much to say. I remember at different times asking him for the short version of what he was sharing. He'd reply, "This is the short version." That is our BJ. A heart welling over with desires to share...and we are so thankful for him!
A quick update before bed: His stats are in the 90's! We pray that is the trend for the night. Since his reserves are low, he is very sensitive to meds and the blood warming mechanism in the CVVH machine. His temperature goes from high to low so they are continually "tweaking" (all you "You've Got Mail" fans will understand) to keep him in the normal range. Pray that they are able to take off enough fluid to relieve the pressures of the internal organs - his kidneys are being squeezed and that is part of the reason they are not functioning. Perhaps this is simplifying his internal concerns, but this is at least part of it. We know God is ultimately in control and we continue to pray for His healing hand to take action! Do we dare ask for patience? You know how dangerous that is! We love you Lord and we press on,
BJ's Sat's continue to be in the 80's to low 90's. His heart rate and blood pressure are stable. His blood is not perfusing or circulating throughout his body as well as it should, so his hands are a bit cool. Interestingly his feet, which you would think would be colder because of the damage to 2 major veins from the canulas, are warm. Oh well, like that is the first confusing thing that has occurred.
Thank you Beth for sharing from your heart and the inspiration of His message through you. I too believe that the Lord would have us surrender our all, daily. In light of these circumstances, I believe the POWER of His message is truly for all who read this, and beyond. Let Him begin by convicting our family of having our "hands too full" when He has much for us to do. Like the disciples, lets drop our nets, and follow... (BJ's family)
Beej looks good this morning! His hair washed and combed, his face thinned down, and His SAT's in the mid to upper 90'S...Praise Jesus!!! I believe he will be turned back to his tummy this morning (bye-bye thin face). His heart rate is down, his blood pressure is close to normal. We are so thankful this morning!!!
They have switched out Beej's ventilator (technical difficulties), he's still on an oscillating ventilator but since the switch his SAT's have been hanging in the 90's, so we're grateful. He had a fever for a little bit this evening but it has now broken! A good way to end such a tense day. These times in which we can breathe a sigh of relief seem too few and far between but are definitely cherished by us all.
Tonight, Beej's SAT's are back in the mid 80's. His blood pressure is in a pretty good place, but still a little low. There has been no discovery made about where he is infected.
Day 37. Thankfully, yet cautiously and taking nothing for granted, BJ's stats are up - oxygen is back in the 90's and blood pressure is looking better. Although the roller coaster ride is quite infuriating, we are grateful for your perseverance with us in fervent prayer - it is huge that you care. Most importantly, we know God is able.
BJ's body does not have the ability to fight infection right now. He does have an infection that Dr.'s cannot find. They are trying to grow cultures from blood and other fluids. They have tried to reposition him in such a way as to allow minimum stress to his lungs. His Sat's are in the 80's, his blood pressure remains low. They are pulling out any tube that he really does not need at the moment, and repositioning others.
Medical ping pong seems to be going on with BJ's SAT's (blood oxygenation). They spent much of the night in the 80's. Then after the morning chest x-ray, they jumped to 98. They have started to drop back to the low 90's. His color is a little better this morning. He is on dopamine for low blood pressure...which is still pretty low.
His SAT's bottomed out at 80, then rose some to the mid 80's, due to increased ventilator pressure, and increased oxygen percentage on the ventilator. His blood pressure has dropped too low, and they started him on a med to increase it. The x-ray showed no air pockets. They are thinking a new infection is trying to take hold.
Today there has been a general trend down in BJ's SAT number. He began the day in the mid 90's. After removing the Nitric oxide pump, his numbers dipped into the 80's then rebounded. A couple hours hours later, they began to gradually drop to where they are now...the low to mid 80's. Trying to keep things in perspective, there was a time we would have been thrilled with these numbers. But now, on the other side of ECMO we expect higher numbers.
BJ is on his back again, swelling looks a little better. They gave him an ultrasound to check out his abdomen and an xray to make sure his bones aren't infected. He still has a high white blood cell count, though it has come down significantly since that first week. He is still very sick, but his numbers remain stable, and they are watching him closely. So, we continue to wait.
Cvvh (dialysis) has started again. BJ's numbers remain fairly consistent. No rain. A Physical Therapist has begun to work with his limbs. We are told that when he awakes, he won't even be able to put his finger on a button until his muscles are retrained.
If this is a joke, it's only a little funny...it's raining outside, but not in room 2001. They are preparing to hook him back up to the Cvvh machine. They plan to use a lower rate of fluid removal to try to fool his kidneys into believing they are already doing some of the work.
We're still walking in the desert metaphorically speaking...no sign of "rain." Well, that's not true, there have been "traces of rain" (not your old cd's bart), but we need a gullywasher! (BJ, when you are well enough to read this...please forgive me.)
Beej is resting on his tummy again. He is off of the Cvvh machine. Now is the time for his kidneys to begin to work as he is less swollen. If he doesn't begin on his own, they will try to induce function with a drug. His SAT's continue to be in the 90's, and only dipped briefly during the turning of his body. Ventilator settings are still below what they had been. The morning x-ray was inconclusive as to whether or not the air pockets are gone. The Dr. said they are either still present or he has more blood collecting around the left side. All in all, he looks better.
I just talked with the doctor and they are going to take him off the CVVH (dialysis) machine for 24 hours to try to get his kidneys going. This too will make it easier to prone him. All this is happening during most morning worship services - we are reassured again that God is in control.
BJ has had a mostly stable day. While we were at dinner tonight, his pneumo's caused his left lung to partially collapse, so his SAT's dropped into the 80's. However, after increasing the ventilator pressure a bit, the numbers returned to the 90's. Dr. Sichting believes that we came down too much, too fast on his ventilator pressure today. He's been doing so well, so it was understandable to us that they would do so. Deanna believes it had more to do with the suctioning of his lungs. He is notoriously slow at rebounding after lung suctioning that produces quite a bit of fluid. Tonight, for the first time in a couple days, the RT got quite a bit of fluid. Deanna has always had a moms sixth sense on such things, so who knows. I guess we'll find out what the morning x-ray reveals.
(Yes, Dr. B.W.)
Another quiet night!!! The Christmas Carol "Silent Night, Holy Night" has all new meaning to us. We are so thankful for this restful stretch. It has been a long time coming. Believe it or not, he has developed a second pneumothorax (air pocket in chest cavity around lungs) on his left side. Nurses/RT's turned down the ventilator pressure as a result. Amazingly his Sat's and blood gases have improved! His Sat is running 99-100, and his PO2 is in the 70's and 80's! Thank you Lord Jesus for continuing to look out for him.
Have you ever hung out at a hospital on Friday night? It is a good night for peace and quiet! A good time to focus on our Lord, and to seek His will and desire. I know that runs counter to our culture, but what a blessing is in store!
BJ continues to be stable!!! Remember...a boring day is a good day! His SAT's are in the 90's, his blood gases have been pretty good. He got his hair washed today, the first time in 33 days (Thanks nurse Deb!!!). Boy is mom happy! He still isn't "making water." Please Lord, let him "rain."
Bj has developed another pneumothorax (air pocket which causes the lung to collapse or not be able to expand) around his left lung. However, it is small, and has not affected his SAT's (oxygenation percentage). For now we will leave him on his tummy. When he is turned tomorrow, if the pneumo does not go away, they may put a third chest tube in. Lets pray it disappears, in Jesus Name, and by the power of His blood!
BJ is about the same this morning. They have decided to leave him on his tummy for at least 20 hours. He has had some bleeding from around the neck catheter. They had it stopped a couple times, but then doing x-rays or other routine procedures starts it again.
Tonight, BJ's temperature was under 95. He received new blood products and this contributed to his low body temp. He is covered with something called a "Bair Hug"
After 32 days in the hospital, BJ is finally off of his back and on his stomach. It takes a lot of work to get him turned over with lines and tubes in so many places, but it is done. They will repeat this process twice a day if he tolerates it.
The Catheter is in!!! Praise God. They ended up having to use the external jugular, which they did not want to do as it was the internal jugular that the canula had been in, and had to be tied off as it was in poor shape. We are thankful. Dialysis, or the Cvvh machine is back on line.
Update after the below message...the procedure will begin after 2pm...
BJ had a restful night. His swelling in his face is down enough to actually see his eyes slightly...haven't seen them for days. His ventilator pressures are down, and his sats remain in the 90's! Praise God!!!
BJ is on a new air mattress (Lisa R.), designed to help with his bedsores. His Sat's are in the 90's, and the support settings have been turned down a bit. We give all Glory and Praise to Christ our Savior for what he has afforded BJ today. He has fought hard, and his numbers didn't waiver during invasive procedures. Nurse Diana said, "I want to cry cause he did really good!"
Jayden has gone to the lap of Christ...he will no longer hurt, he will no longer suffer...He is home.
Jayden is off of ECMO. His stats are not good...Dr.s say it is a matter of when, now.
The surgery is over, earlier than we expected. The surgeon told us it went as well as it could have; BJ's vital signs stayed consistent throughout the procedure! BJ's jugular is now tied off permanently, but other veins will enlarge to compensate. The filter (to prevent blood clots to his heart and lungs) is now in place in his abdomen. Clots caught by the filter will most likely cause chronic swelling in his lower body, but compared to the alternative, we're okay with that. His two femural veins have been repaired as best they can be, but clotting in these locations is still a significant risk.
The surgeons have successfully finished on BJ's left femural vein, without having to go into his abdomen! Praise God! However, his jugular artery is not in usable condition for his CVVH catheter to be placed there... so tomorrow they will do another procedure to hook him up to the kidney machine. They are now working on removing the cannulae in his right leg.
The neck cannulae is out, and the filter is in place. The surgeons discovered a tear in the back of BJ's femural vein, which has probably been the cause of the build-up of fluid in his stomach. There is a good chance they will have to go into his abdomen, which is very high risk. If so, they will probably end up tying off his femural vein permanently... This means he could have circulation problems in that leg, and his body will have to develop other methods of transporting his blood.
Still in surgery: BJ is doing well, his vitals are fine. Right now, two of the surgeons are putting a filter in the bad vein in his leg (to keep potential blood clots from going to his heart or lungs). A third surgeon is working to remove the cannulae in his neck and hopes to replace it with a catheter for BJ's dialysis.
BJ's surgery started about 30 minutes ago and will take around 3-5 hours. Once his surgery is over, the doctors will be taking little Jayden off of ECMO. He will still be on the oscillating ventilator, but the doctors do not expect that to be enough. Please, PLEASE continue to pray desperately for Jayden and his family, that God would be comforting their hearts and minds today. Pray for miracles all around the PICU wing of St. V's. Many are hurting today.
We are being told that BJ's surgery may begin a little later than 3PM, and will last maybe 3 to 5 hours. Potential complications will be bleeding, clotting, and if fungus is adhering to the canula, then moving them could spread it into his bloodstream causing him to be sicker. He is on anti-fungal meds. He will be taken off of the Cvvh machine at 2PM. Thank you for lifting him up at this critical time.
As we await the 3pm hour, and as BJ's numbers continue to be stable, I thought I'd share from his journal. This time from the "How God worked in my life today" section.
This morning finds a flurry of activity in BJ's room. Since the medical staff work 12 hour shifts, there are more people available at shift change time (7am/7pm). When I walked in a few minutes ago, 25 year old fireball nurse Natalie (happy birthday) was giving direction to other staff as they were moving BJ from his bed to an OR bed which will be used in his room (which doubles as an OR for apparent reasons). The surgery time is still 3pm, but to wait till later to move him would draw on too many staff from rooms they are needed in. When Natalie gives direction...it's best to do what you're told. (She is awesome, and we have been thrilled with her care).
Once again, we find ourselves on the eve of canula removal. As we understand it, the 2 surgeons will remove all 3 canulas (tubes), add 2 catheters, and repair a torn vein. Clotting will be a potential side affect, and a potentially serious one.
Believers, I want you to know how integral you are to this process. I just went back into his room, and his SAT's were up to 90 (after dropping into the low and mid 70's). I said, "wow, that's a dramatic difference, what did you do?" The nurse said, "nothing"..."we turned the pressure up a little."
BJ's numbers have begun to drop, and we don't know why. They are working to correct it but are unsure what they are dealing with. His Sat's have dropped into the 70's and his Blood Pressure is high. They thought it may be that his lungs were filling with fluid as the cvvh machine clotted off again. They are preparing to do an x-ray to check. Meanwhile they restarted the cvvh, and it immediately clotted. This is spiritual war...
We were just afforded the rare privilege of talking to Beej when he was awake enough to respond with a head shake. They are not allowing him to be awake, so it was so good for us. He told us he is not in any pain. We made him aware of the 1000's of you that are lifting him up to the foot of our Father. We got to encourage him and just love on him a bit. Lord we love you, and give you Praise for these few moments...haste the day when we will have more time to share of the many miracles You have performed in him.
Last night, a new family arrived with a 6 day old baby in an emergent situation. The infant was not breathing, and the Dr. had to intubate (put a breathing tube down the throat). The baby did not make it...and the family fell apart. We have been here 30 days, and had not seen this. The other families (including us) wept for them. It hurts so much, and hits so close to home for all of us...but to talk that way diminishes THEIR pain. Jesus, please bring healing to this broken family. I do not know how to survive this situation, but you do Father, and they need your help. Please touch them.
Nurse Deb said "You can call today a positive plus." BJ is hanging in there. His blood gases are good, his SATs are good, his heart rate is low and steady...no fever either. Somebody out there has children who say "Yay God!" I agree wholeheartedly!!!
update beyond below msg....doctors just decided to postpone to tomorrow am (don't know what time). starting cvvh now...
While awaiting the surgical procedure for today (canula removal) I thought I would share another journal entry from BJ's Peru journal. This one is on Obedience. He was reading in John chapters 11 and 12:
Overnight, BJ spiked a fever that would not respond to medication. It got up to 104 and sat there. A hyperthermia blanket was brought in, and after a while finally broke. His temp is down to 99, and his heart rate which was elevated all day yesterday, is finally down...Thank You Father!
My favorite Dr. came in a couple of minutes ago and said, "he's doing pretty well."
There have been few significant changes in the course of the day...and that is not a bad thing! He continues to fight a fever, his heart rate is elevated, but his SATs remain in the mid 80's as they reduce pump oxygen percentages and pressure. We are still waiting for those kidneys to kick in.
Hello, Family! We pray your Sunday morning services all found you drawing close to the feet of our Savior. Here at the hospital, we are doing the same as BJ's body fights to recover from the shock of going off ECMO.
Bj had a restful night. His Cvvh machine (pulls impurities out of the blood) clotted off 3 times. It is uncertain what they are going to do about that right now. They have not restarted it again. Consequently, his swelling will increase.
Beloved, tonight BJ rests in his bed... finally on the ground, free of ECMO. He has resided 6 feet in the air for the past 3 1/2 weeks (for ECMO) with his bed on a motorcycle lift to allow gravity to work in returning the blood to the filter.
Last night, the doctor called Deanna and me into his office to discuss BJ's condition. His words were something like..."I'm not saying he has a 0% chance of making it"...he went on to prepare us (as is his job) that BJ's condition was not good, and basically conveyed that we needed to begin preparing to lose him as he wasn't sure he'd do well overnight.